Anyone who wants to learn more about Pfeiffer syndrome, please don't hesitate to reach out. I'm no expert, but I'm more than willing to share what I am learning. If you're a parent with a new craniosynostosis diagnosis or an old one, PLEASE connect with me. Talking to each other will only make us better advocates for our children! I am also here if youu need a shoulder to cry on like others have been there for me.
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A blog about a normal, loving family whose littlest member has a unique diagnosis
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